Stories and links to web sites that can provide additional support and information to myeloma patients.
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Written by Dr. Mel
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Sunday, 07 May 2006 |
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By now, we are getting to see that we have some very special people in our myeloma community – outstanding people who show by their own example how we can enrich our own lives, and they show that what our lives may lack in longevity, they certainly can gain in depth. Louis Rukeyser has been the latest famous myeloma patient to make news. The popular business reporter and TV superstar battled back problems long before the official diagnosis of the disease in 2004, and after that point, he lived another two years. So many of the “Sketches” are about those famous and admired people who have had this disease, and although many have died, some are still living and living well. This makes me feel that myeloma patients are among the elite, we are in a special club with Geraldine Ferraro, Francesca Thompson, Lenny Zakim, Ira Wolmer and his wife, and Larry Miller. I have many more examples, and this writing is kind of a mid-way pause in the profiles. It’s a time to collect some thoughts, and share with you some of the complimentary treatment that I have pursued over the years – carrying me to the 10th year mark since my diagnosis in 1996. I am never very good at keeping secrets. |
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Written by Dr. Mel
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Sunday, 19 March 2006 |
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Bisphosphonates beware. Now, I am not saying there isn’t a major place for these medications which reduce the breaking down of our bones, but for those who have used these for a long period of time, well, we just shouldn’t make any bones about it. In my case, and others, the long term use of these drugs cause more problems than the disease, itself. |
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Written by Dr. Mel
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Sunday, 12 March 2006 |
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In addition to my regular medical treatment, like most patients, I have taken supplements. I have avoided herbals because of a concern of interactions with my medications, but there is a category of treatment that I call “Don’t ask, don’t tell,” where supplements are quietly introduced into the treatment process. Sure, nothing should be completely “don’t tell,” but I wouldn’t make a big deal about vitamins, and I am not sure if any of these really have worked, but I do suspect some benefit. |
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