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My Odyssey Print E-mail
Written by Dr. Mel   
Tuesday, 28 February 2006
Article Index
My Odyssey
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During these good years, I moved to my dream house on the beach outside of New Haven, and finally bought my dream piano – a Steinway Grand. Why should myeloma stop us from living for today? I always loved music, and I grew up with a nice baby grand. During the 1980s, I was doing well with musical efforts. I was writing quite a bit of jazz and practicing for hours on weekends. But when the myeloma hit, I was forced to stop playing. The pain was too great. Then, within the past year, I did feel well enough to go out and get that piano. I still can only play for a limited time, and I do have those numb hands from neuropathy, but that condition has sort of come in “handy” – it’s the excuse for my less than exceptional performances.

 

Now, all this brings us to this early Sunday morning in late February of 2006. I have noticed some increase in the cancer protein level. The increase is practically infinitesimal, but it is there and giving me some cause for concern. I have had three wonderful years on the combined Revimid(now Revlimid) and Dex therapy. These have truly been the best years of my life. Each day is more precious than the day before. But if the cancer returns, I am ready to reach on that shelf again, and go forward. I know I can. But at the same time, we all realize there has yet to be a cure for this disease, and at best, we can hope to manage it and deal with the drugs and their inevitable side effects. I know Dex can drive you wild, especially at the beginning of some of the treatments when it is taken with great frequency. But at reduced doses given in greater intervals, our insanity is just temporary.

 
 
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